Insights

NZ Cerebral Palsy Register Report

The New Zealand Cerebral Palsy Register (NZCPR) has produced its first report. The Report is a summary of information from people with CP living in Aotearoa New Zealand. It is a first step towards a better understanding of how many people in New Zealand live with CP and how we can better support positive health outcomes for them.

Publications and research projects

Williams SA, Alzaher W, Mackey A, Hogan A, Battin M, Sorhage A, Stott NS.

It Should Have Been Given Sooner, and We Should Not Have to Fight for It

A Mixed-Methods Study of the Experience of Diagnosis and Early Management of Cerebral Palsy.

Journal of Clinical Medicine. 2021; 10(7):1398

Williams, S.A., Mackey, A., Sorhage, A., Battin, M., Wilson, N., Spittle, A. and Stott, N.S.

Clinical practice of health professionals working in early detection for infants with or at risk of cerebral palsy across New Zealand

J Paediatr Child Health. 2021 57: 541-547.

Whitta GT, Paine SJ, Mackey A , Sorhage A , Curtis E , Reid P, Stott NS.

Investigating ethnic inequities in cerebral palsy – a pilot study

Pending Publication

Mackey A, Williams S, Sorhage A, Broadbent J, Battin, M, Stott, NZ.

Community services accessed in first five years for children with cerebral palsy.

Australian Academy of Cerebral Palsy and Developmental Medicine, 11–14 March 2020, Perth, Australia. Developmental Medicine & Child Neurology 62(S2), 30

Williams S, Mackey A, Battin M, Wilson N, Sorhage A, Hogan A, Spittle, A, Stott N.

A delayed diagnosis? Preliminary findings of clinician practice and family experience of diagnosis of cerebral palsy in New Zealand.

Australian Academy of Cerebral Palsy and Developmental Medicine, 11–14 March 2020, Perth, Australia. Developmental Medicine & Child Neurology 62 (S2), 28.

Williams S, Stott N, Wilson N, Sorhage A, Battin M, Hogan A, Mackey A.

It should have been given sooner, and we shouldn’t have to fight for it: Understanding the family experience of the diagnosis of cerebral palsy.

American Academy of Cerebral Palsy & Developmental Medicine conference. Developmental Medicine & Child Neurology, Sept 2019, 61 (S3),162

Williams S, Mackey A, Battin M, Wilson N, Sorhage A, Spittle A, Stott N.

The awareness and use of diagnostic tools for early diagnosis of cerebral palsy in New Zealand.

American Academy of Cerebral Palsy & Developmental Medicine conference. Developmental Medicine & Child Neurology, Sept 2019, 61 (S3) 113

Mackey AH, Sorhage A, Wilson N, Stott NS.

Ethnic diversity of the New Zealand Cerebral Palsy Register.

Australasian Academy of Cerebral Palsy & Developmental Medicine conference. Developmental Medicine & Child Neurology, March 2018, 60 (S1) 1-79.

Battin MR, Williams SA, Mackey A, Alzaher W, Sorhage A, Stott NS.

Neonatal Neuroimaging in Neonatal Intensive Care Graduates Who Subsequently Develop Cerebral Palsy.

Journal of Clinical Medicine. 2022; 11(7):1866.

Mackey A; Williams S; Alzaher W; Sorhage A; Wilson N; Battin M; Stott S.

An evaluation of equity in the cerebral palsy diagnostic process in the New Zealand setting between Māori and non-Māori children

(2022) Dev Med Child Neurol, 64, S2 p 18

Alzaher W; Mackey A; Battin M; Williams S; Sorhage A; Wilson N; Stott N.

Use of cranial magnetic resonance imaging for children with cerebral palsy in New Zealand

Dev Med Child Neurol, 64, S2 p 76

Wright K; Dehar A; Stott S; Mackey A; Sorhage A; Tapera R; Williams S.

Cerebral palsy registers and Indigenous health equity in ascertainment and data quality: An environmental scan

(2022) Dev Med Child Neurol, 64, S2 p 19

Sorhage A; Stott S.

Utility of data linkage for orthopaedic service planning in the paediatric population with cerebral palsy at Starship Hospital.

The New Zealand Medical Journal (accepted for publication July 2022)

Sorhage, A., Keenan, S., Chong, J., Byrnes, C., Blackmore, A. M., Mackey, A., Hill, T., Han, D. Y., & Stott, N. S.

Respiratory Health Inequities among Children and Young Adults with Cerebral Palsy in Aotearoa New Zealand: A Data Linkage Study.

(2022) Journal of clinical medicine, 11(23), 6968.

Wright, K., Dehar, A., Stott, N.S. et al.

Prioritizing indigenous health equity in health registers: an environmental scan of strategies for equitable ascertainment and quality data.

Glob Health Res Policy 7, 24 (2022)